September 25. Christopher went for his flight to Rome for another conference this morning at 10.30 am. Well he got the train at that time.
I saw he arrived and I started to relax because he got there. But then my MS decided to join in the “party” making my legs feel as if my nerves had tensed up and are twitching. Oh the joys!
After a little while of feeling like that and eating they felt a lot better.
I spent the evening watching TV and finished it off watching Phil the power Taylor on the Darts champions league then Country File.
September 26. I woke up with a start from the alarm clock. Obviously I was very cosy. I only got up early as I had a dental hygienist appointment at 9am.
I got myself to the hygienist for 9am and was called in very quickly. For a change that asked me about any medical conditions I have. So I had to mention my MS and my medication, which is Tecfidera. Surprisingly we ended up having a full conversation about MS. It felt good. My teeth felt great after having the work was done, my purse wanted to cry after payment of €71.10.
When I was home it turned into typical Monday morning jobs of going to the supermarkets. It is a lot of walking so needless to say it felt as if my legs hated me. Once finished with all of the walking I decided it’s rest time.
Rest time continued with my legs hurting so much that I just put my feet up. But my fun evening was waiting to start Eggheads, University Challenge, Only Connect and Ripper Street.
September 27. Well I thought it might be a resting day, obviously going for a small walk which I do every day. I came home and rested until I realised I forgot something so I went back out to get it. However, before going out I got an email from Multicare asking when I wanted my medicine Tecfidera delivering. I thought Wednesday would be good, that is until I got an email back saying the date of delivery was the 5th October my brain started the alarm bells. I have an MRI on that day. Not good. So I swiftly emailed them back to say I needed to change my day and told them why. I was happy that managed to change it.
After all the worry the funny feeling in my legs came back. So I’m back on a rest regime.
As the day went on I thought I should watch some of the movies I borrowed from the ESTEC dvd group. So I watched Tank Girl. My response to it was “oh my God! Why have I never watched this before?”
Then for dinner made hutspot it’s an Leiden dish which is made around October 3 or liberation day. When the Spanish who were holding Leiden were defeated. The hutspot was what food was found when the Spanish fled, leaving it hot so the people of Leiden ate it.
September 28. I impressed myself over the first few days I ate no meat not even fish which I usually do.
I decided today to go to the market which I haven’t done on a Wednesday for a while because it’s a little boring but I needed something to do.
Well, I went to the market and it’s exactly as I remember a bit boring as it’s only half of the market.
As I was going down Haarlemmerstraat I saw shops were putting their October 3 decorations up.
But I went home and I watched X-Men First Class. I really enjoyed it.
I just rested for the rest the day.
September 29. I decided I should go for a walk around Leiden to look at the progress of the set up for October 3. I was impressed that most of the roads are already closed and parts of stalls and fair were being set up. Needless to say I was impressed it’s still 2 days before it starts.
I watched a film that I really liked The Lady In The Van. It stars Maggie Smith. I’d heard some good stuff about it and I wanted to check it.
September 30. For a “change” I was awake before my alarm this morning but I didn’t want to get up before the alarm went off so I laid in bed having a thinking and planning my day ahead.
The plans were made and the main thing was to go to the supermarket Albert Heijn to get dinner for tomorrow. So this was a case of walking through the site of setting up October 3. But it was interesting. I was impressed with everything. I got the bits I needed so I went home. For a rest.
After my little rest I decided I should make since refrigerator cake. This is basically melted chocolate, butter and syrup mixed with broken digestive biscuits with malteasers and marshmallows. I put it in the fridge for 2 hours and cut it up.
I got a call from my Tecfidera pharmacy as they were checking which pharmacy I use for any prescriptions I had to tell them other than Tecfidera I’m on no others. I had to pick the pharmacy I would use, so I told them the only one I’ve had experience using and then it was for Christopher’s inhalers. They were happy with this.
It was then time to watch my dvd for the day which The Imitation Game, I actually really enjoyed it.
October 1. Well I went for my usual morning walk and to the supermarket. I got the basics we would need for the weekend due to Christopher coming home on this day.
I’ve actually had a good week no huge MS flare ups. The tingling in my legs wasn’t really a flare up, they do it often but that’s a usual MS thing. I know a lot of people didn’t realise I have MS but I’ve been diagnosed for 7 years now from 09/09/09. Needless to say I’m good at hiding it and acting.
So I’d say success!